Is that the Sun I See? Living with Chronic Fatigue Syndrome…

On a good day I wake up and take my meds by 10-12 and then I take a nap for a few more hours.  By the time the meds kick in it’s 2-3pm and I know whether I’ll be able to get up and move around or not.  I take my night time meds when I remember which is usually sometime between 9pm and 1am (lol).  I go to sleep around 5-6 am and that’s it for my day until it starts all over again when it’s time for my morning meds.

On a bad day I wake up and take my meds, take my nap and wake up feeling too tired, stiff, achy or just in plain old pain to move and I spend the day in bed, only getting up to go to the bathroom or do small things necessary as a mom.  These days usually happen in multiples and before I know it sometimes, a week or two has passed without me leaving the house or getting much done.  That’s life with Chronic Fatigue and Fibromyalgia (among other things, i.e., depression, etc.)

Now that you know what my life is like I can explain the title of this blog post…”Is that the Sun I See?”

I woke up yesterday, took my meds and my “after meds nap” and woke up feeling better than normal, better than I have in a long time actually.  Coincidentally, it was sunny and dry out which is unheard of around here for long periods of time.  I did a few things around the house and was sure not to over do it so I don’t regret it the next day and then I worked all night on The Coupon Wiki.com website.  All in all, it was a good day.  Plus, it was quiet last night because Tyler spent the night with Grandma and Poppy!  (God love them!)  Well, I can’t really say quiet because there were at least a dozen teenage boys in and out of the house all night with my older son but hey, it’s quiet compared to when Ty is home! lol

Before I fell asleep this morning (I’m on a backwards schedule), I said a quick prayer that I could have another good day when I woke up, all the while doubting I could get two good days in a row.  However, when I woke up this morning, I didn’t feel quite as well as yesterday but still, better than normal.  I was about to go back to sleep around 2pm (Ty is at a field trip in Seattle today with Grandma and Poppy) and then the phone rang.  It was Ty   My little ray of sunshine/thunderstorms LOL  He started to tell me about his trip to Seattle and the Planetarium and how he got scared because of the high ceilings (he’s always had a fear of high ceilings because he feels like he’s going to float to the top) and then my mom got on the phone and told me to open a window because the sun was out and it was warm enough to get some fresh air.  (Warm is 54 degrees for my Floridian friends lol).

I forced myself to open a couple of windows and curtains (I’m sleeping on the couch in the living room) and I saw this bright light…so bright and inviting…could it be?  Yes, it’s the sun!  (Sometimes I wish it was the other bright light lol).

I started to feel better almost instantly, the fresh cool air and the sunlight, just for a few minutes was enough to get me to sit up and blog about it!  In fact, I’m going to work on getting a shopping list and coupons together so I can go shopping in a few hours when Ty gets home!  That may not seem like such a big deal to most people but anyone who lives with a chronic illness such as chronic fatigue syndrome, fibromyalgia or even depression will appreciate why it’s important enough for me to blog about. 

This makes me wonder how much the weather here affects my health.  I know that weather does play a part in moods, etc., but now I wonder now if it plays THAT big of a role in your overall health.  I guess only time will tell.  We are supposed to have a few more days of sun (God willing lol), so I’ll let you know how it goes.  I have to constantly remind myself not to over-do it on my good days because I won’t have another for a long time if I do.  But when you are immobile so often and get a chance to do things, you tend to want to make up for lost time and/or get as much done as you can because you never know when you’ll have another chance to do so.

P.S.  Housekeeper needed…. lol

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